TY - JOUR AU - Chadwick, Ruth AB - Knoppers et al. Genome Medicine 2013, 5:38 http://genomemedicine.com/content/5/4/38 M U S I N G S The Human Genome Organisation: towards next-generation ethics 1 1 2 Bartha Maria Knoppers *, Adrian Thorogood * and Ruth Chadwick * Ten years after the completion of the human genome [1], suggested concrete mechanisms to protect these rights, looking back over the policy statements of the Human such as ‘procedures for long term storage, access, and Genome Organisation’s (HUGO) Ethics Committee (EC) use’. It also stipulated that these procedures be addressed and of its Intellectual Property Committee (IPC) is more during informed consent [3]. e Th 2000 IPC Statement than just a trip down memory lane; it is the revelation of stressed that consent is needed from a donor where a a seismic shift in the values underlying genomic research patent application is le fi d for an invention based on (Table 1). Founded in 1992 at the inception of the Human biological material of human origin [4]. Genome Project, HUGO not only provided prospective e Th familial nature of genetic information and the scient ic fi leadership on approaches to intellectual property, impact of research on community and population interests but also on ethical, TI - The Human Genome Organisation: towards next-generation ethics JF - Genome Medicine DO - 10.1186/gm442 DA - 2013-04-29 UR - https://www.deepdyve.com/lp/springer-journals/the-human-genome-organisation-towards-next-generation-ethics-V5ZtbymL69 SP - 1 EP - 3 VL - 5 IS - 4 DP - DeepDyve ER -